The largest validated real-world dataset of 6.3 million NHS patient records, analysed by our proprietary AI for unique patient insights.
Through close collaboration between the Akrivia Health team and leading NHS partners, we have created the world’s most comprehensive real-world dataset dedicated to mental health and dementia.
- The largest validated real-world dataset
- 6.3 million NHS patient records
- 20+ NHS Trusts
- Structured & unstructured Electronic Health Records (EHRs)
- Longitudinal, Evergreen and Recontactable
- Alzheimer’s, Bipolar, Major Depressive Disorder (MDD), Dementia, Schizophrenia, Neurodevelopment Disorders
Patient Count- Mental Health
Patient Count- Neurological Conditions
Information Governance
Information Governance: Protecting Privacy, Ensuring Trust
At Akrivia Health, we work closely with our healthcare partners to safeguard patient data through advanced technology, strict processes and robust organisational controls.
- De-identified data – all personal information is removed to protect individual privacy
- Secure, structured datasets – analysis outputs are provided only in aggregated form
- Highest security standards – data stored in UK-based ISO 27001 certified centres, with regular external audits and security testing
Our commitment: ethical, secure, and compliant data use you can trust.
What’s Inside the Data
- Structured data: Demographics, diagnoses, care pathways
- Unstructured insights: Extracted from clinical notes using bespoke NLP models (medications, symptoms, disease trajectories)
- Privacy-first: Fully anonymised, harmonised across multiple IT systems
Akrivia Data Vs HES Vs CPRD
| Feature | Akrivia | CPRD | HES |
|---|---|---|---|
| Source | Mental health EHRs (20 NHS Trusts) | GP records | Hospital data (England) |
| Coverage | 6.3M mental health patients (40% of in-care pop.) OPC linkage with 600,000 patients | -20% UK population | All NHS hospital activity |
| Data | Structured + NLP from free text (symptoms, notes) | Structured, coded (Read/SNOMED) | Structured, coded (ICD-10, OPCS) |
| Strengths | Deep psychiatric data, symptom- level detail (400+), social factors, linkage (primary care, costs, deprivation), rapid access, expert clinical input | Large, nationally representative primary care, linked to HES & mortality | Complete national hospital dataset with admissions, procedures, LOS, costs |
FAQs
Does Akrivia Health sell the patient data to pharmaceutical companies to run drug trials?
The data is not sold as we operate a data services model. Registered Network individuals can work with de-identified aggregated data by using the analytics platform. To protect privacy, it is not possible for individuals or small groups of individuals to be identified. However, one of the intended uses of the data is to improve the efficiency of drug trials to speed up access to new drugs for patients at a lower cost.
Do all patients make their data available if their hospital is a Healthcare Partner?
All patients reserve the right to opt out of the data processing by contacting the hospital that they are receiving treatment and care from. We adhere to all relevant statutory requirements relating to processing data in the UK
Where is the data being stored?
All data is stored in electronic format by the individual hospital from which the patient receives treatment or care. Each hospital will be the Data Controller for that individual’s data. Data is extracted from each hospital’s patient management system under a contractual agreement with each trust and securely stored by Amazon Web Services (AWS) on behalf of Cristal Health Limited (branded as Akrivia Health) who is the Data Processor.
What data standards are being used to ensure the data is kept safe?
We use a robust information governance model to safely manage data and protect individual privacy. Any suppliers engaged will need to demonstrate that they meet all appropriate industry standards and certification as required by the NHS, ICO and EDPB e.g. ISO 27001. Additional boards will be added to the governance model to ensure there is appropriate oversight and that stakeholder views are represented.
What can you do with the data?
Registered Network individuals can work with the de-identified aggregated data by using the analytics platform. Akrivia Health is currently developing pre-defined algorithms and tools to be able to query the structured and unstructured data. Results will be provided on an aggregated basis to protect individuals’ privacy.
In addition, Akrivia Health can provide consulting support to determine more complex models to be generated.
Are patients involved in the business as it is their data?
We actively encourage advice and feedback from patient and public groups on its work. Where appropriate, patient representatives are appointed onto Governance structures that are established. As part of our Corporate Social Responsibility plans, we will measure and report on the actual impact that we have for patients.
